House debates

Wednesday, 22 August 2018

Questions without Notice

Cystic Fibrosis

2:15 pm

Photo of Rebekha SharkieRebekha Sharkie (Mayo, Centre Alliance) Share this | Hansard source

Thank you. My question is to the health minister. In a welcome move, the Pharmaceutical Benefits Advisory Committee recommended that cystic fibrosis medication Orkambi be added to the Pharmaceutical Benefits Scheme. Minister, as you know, cystic fibrosis is a life-limiting condition. For eight-year-old Will Grue, in my electorate, it means different medications every day and several weeks each year in hospital. Orkambi increases the life expectancy of children and young people, but currently the medication is prohibitively expensive. Minister, would you please provide an update on when Orkambi will likely be listed on the PBS and therefore become available to children like Will?


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