Anne Urquhart (Tasmania, Australian Labor Party) Share this | Link to this | Hansard source

At the request of Senator Griff and Senator Polley, I move:

That the Senate:

(a) notes that:

  (i) 12 May 2018 is International Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) Awareness Day,

  (ii) ME and CFS is a debilitating neurological illness that affects the brain, endocrine system and muscles in adults and children,

  (iii) ME and CFS affects between 94,000 and 242,000 Australians, with around 25% of people with ME and CFS unable to leave their house or bed,

  (iv) the lack of a current diagnostic test for ME and CFS is a barrier to people receiving timely and accurate diagnosis,

  (v) there is no current cure or effective treatment for ME and CFS and more biomedical research needs to be done to better understand this medical condition, and

  (vi) there are actions and activities across Australia this week to mark Awareness Day, including Millions Missing events;

(b) acknowledges:

  (i) the positive development of the National Health and Medical Research Council (NHMRC) establishing a ME/CFS advisory committee to advise if new guidelines are needed in Australia, and

  (ii) the important role of families and carers of people living with ME/CFS; and

(c) urges:

  (i) the NHMRC to ensure the ME/CFS advisory committee runs an open and transparent process that includes advice from leading scientists and clinicians, and

  (ii) federal, state, territory and local governments to take leadership, and work with people who have ME/CFS to help them get the support they need.

Question agreed to.