House debates

Tuesday, 29 March 2022

Questions without Notice

Health Care

3:17 pm

Photo of Greg HuntGreg Hunt (Flinders, Liberal Party, Minister for Health and Aged Care) | Hansard source

I want to thank the member for Robertson. On Sunday I had the privilege of meeting Jess Ragusa from the member's electorate, indeed, I think, from Copacabana. Jess has been an advocate for better access to better treatments for cystic fibrosis. She is a sufferer herself. She said very simply that with the listing of Trikafta, a medicine for 1,900 patients, which will save approximately $250,000 per patient, she and her husband can now plan on having a child. Her life will be extended, her quality of life will be improved and her capacity to have a child is now secure.

Alongside other patients who were there on Sunday, such as Kai, 11-year-old Heidi, and Sarah, who's a year 11 student from the Mornington Peninsula—all of these patients with cystic fibrosis have a better chance of a longer life and a better life. Indeed, as we look across the last few years, we have been able to progressively list new medicines for cystic fibrosis, such as Kalydeco, Symdeko, Orkambi and now Trikafta, a quarter-of-a-million-dollar medicine. That is something we can do because we believe in it, because we can fund it and because we are committed to it.

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