House debates

Monday, 17 September 2012

Private Members' Business

Mitochondrial Disease

11:57 am

Photo of Laura SmythLaura Smyth (La Trobe, Australian Labor Party) Share this | Hansard source

I am pleased to be able to speak in this debate today and I commend the member for Cook for bringing the matter before the House. It is a matter that has certainly been raised with me by members of my own electorate who are concerned about the debilitating effects of mitochondrial disease. I must say I had not anticipated reverting back to the dark recesses of my mind for the components of cells to participate in a debate on mitochondrial disease today, but I have had the opportunity to think about the role of mitochondria in cells. When you think about that and about the impacts of dysfunction in mitochondria on the ability to produce energy for the sustenance of all systems in the human body, it really does not take much to realise that the range of diseases that fall within heading of mitochondrial disease are very significant and have very deleterious effects on the health of those who suffer from them.

Mitochondria are the point in the human cell where around 95 per cent of energy is produced. In order for all other bodily systems to continue functioning these are obviously fairly significant cellular components. So it is important that further research be encouraged into mitochondrial disease and the causes of mutations in mitochondria to ensure that people who are facing the wide range of health impacts that arise from mitochondrial diseases might be better assisted.

I mentioned at the outset that I had heard from constituents of my electorate about the issue of mitochondrial disease. I would like to quote from some correspondence I have received from one constituent, a young woman called Amanda Filleul, who said:

'I speak now for those of all ages, the young, teenagers and adults of varying ages who suffer from this debilitating and misunderstood mitochondrial disease. Many will not get to enjoy the milestones of their lives and live to their fullest potential. We need a proactive approach. We need people to listen to our stories, to gather information and at least find, firstly, a successful treatment, if not a successful cure.' In concluding my remarks, I would say that that really does sum up the tenor of this motion, which is aimed at promoting further research and investigation into this debilitating disease and encouraging greater awareness of it in our society. I commend the motion to the House.

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